My interview on the Arts Ably podcast is up! Diane and I talked about how my artistic practices in music, writing, and embroidery shift with my ME/CFS and disability.
Category Archives: lit
The Visceral Self Writing Intensive
In April I started a 12-week writing intensive called The Visceral Self with Jeannine Ouellette of Writing in the Dark over on Substack. This intensive was a bit more intense than I anticipated and made me realize that I really need to do things at my own speed. I started off participating fully but had trouble keeping up with the extra reading, and then participating in the comment section fell by the wayside, then I had an infection that meant writing and reading weren’t possible at all for a couple weeks so I had to accept that just doing the main exercises on my own time was all I could manage. I felt that I was missing out by posting things late and not really participating in the comments, but my disability means I have to choose what works for me both physically and cognitively.
Continue readingI’m on the PEM Podcast!
A couple months ago I had the honour of being interviewed by Daniel Moore for the podcast Post-Exertional Mayonnaise. The name of the podcast is a play on Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS.
Daniel and I had a wide-ranging discussion and talked about whether its possible to flourish whilst living with ME, making art with a disability, flow states, symptomatology, meditation, and Stoicism.
You can also listen on your favourite podcast platform via the PEM Podcast webpage.
Nov ’23 to Feb ’24: Renewal and Propagation
It’s been a challenging three months. Winter is always hard on my system and I’ve been getting all my vaccines up to date which has required a fair bit of recovery time. I also found out my cyborg part (an iliac vein stent) needs an adjustment so I’m waiting for a date for day surgery. But, because creative work is what makes me flourish, I’ve done a surprising amount of work in that time.
In December I realized that my routines weren’t working well and were causing me a lot of unnecessary internal urgency so I totally scrapped them and rebuilt them from scratch. It took about a month of trial and error but I now have routines that work so much better for where I’m at cognitively, physically, and with my current projects. My music work is a bit more spaced out now, as is my journaling, but the internal striving and pressure I felt with my old routines is gone.
I do think the impetus for such a large shift is due to my continuing research on the vagus nerve and polyvagal theory. Urgency activates the sympathetic (stress, fight, flight) system, and reducing that means I can come back to ventral vagal (calm and engaged) much more readily which is very good for my entire system.
Embroidery WIPs
Monthlyish Update: Getting Guts in Order (late Sept to early Nov)
Note: This has been cross-posted on my ko-fi. There are a few other monthly updates there if you would like to read back a few months.
Webinar Report
Another monthly-ish update and another very full month. The main creative work on my plate was teaching a webinar for CHASE Medical Humanities about the visualization process I use to create my symptomatology pieces as well as how to use the poetic technique of homophonic translation to re-vision and re-own dense scientific texts.
It felt good to stretch my teaching muscles again. I’ve been teaching in some capacity since my late teens—music, yoga, and meditation—but had to stop when I got sick in 2015. Despite an ME/CFS crash the day before, I was well enough to present my webinar and the participants seemed to enjoy and get a lot out of the work. A few people even shared their symptomatology image/test pieces on social media. Here are a few:
Gillian Blekkenhorst started with a trachea and expanded their piece from there.
website: https://blekkenhorst.ca/
Twitter: @gblekkenhorst
Webinar: The Invisible Made Visible
I’m teaching a free webinar with CHASE Medical Humanities in the UK on Thursday, 26 October 2023, 5:30pm UK time, 10:30 am SK time. I’ll be leading participants through my process for creating both the visual and textual aspects of my symptomatology pieces. I’m very excited about it!
You can register here: https://www.eventbrite.co.uk/e/the-invisible-made-visible-a-visualization-writing-workshop-with-lia-pas-tickets-726765173197
This webinar is open to all, not just people in CHASE institutions. For the institution question in the registration I usually put n/a, and my position as independent artist.
Continue readingA Book, A Card, An Aria, A Teaching
My contributor copies of Sharp Notions arrived and it is a stunningly gorgeous book. It’s hefty and printed on full colour glossy stock.
tethered by fluid and ligaments (2023)
I have completed my liver embroidery. It’s another large piece, H 15″ x W 21″ (38 × 53 cm). I stitched it from 20 June 2022 to 5 June 2023. I’ve titled it tethered by fluid and ligaments.
Unlike some of my previous symptomatology pieces, my liver issues haven’t been resolved during the stitching of this piece. . . .
Continue readingA Cover, A Critique, A Map, A Mention
Sharp Notions Cover Reveal
The cover for the forthcoming anthology, Sharp Notions: Writing From The Stitching Life, was revealed in February, and it features my embroidery, she breathed!
Jan-Oct 2022 Creative Things & Forthcoming Work
I’m still catching up with posting about all my activities, so here’s what I’ve been up to since January 2022. More interviews and some exciting forthcoming work.