I’m very honoured to have two pieces included in this year’s Opulent Mobility show! Opulent Mobility is an international annual exhibit that asks artists to re-imagine disability as opulent and powerful. It imagines a world where disability is celebrated instead of denied, ignored, and feared. These exhibits are curated by founder A. Laura Brody and disability arts activist and photographer Anthony Tusler and include art and artworks from across the country and around the globe.
Continue readingTag Archives: mecfs
the wandering ghost
I completed my largest embroidery to date—the wandering ghost—in June. The stitched area is 53 x 21 cm (21 x 8.5 inches).
Clean up took a lot more time than usual because the chalk pencil I used was especially stubborn to wash out of the cotton and I wanted to wet block instead of iron it which took a bit of figuring out since that’s a new process for me. But it is done! Aside from cleanup I worked on it from June 14, 2023 to June 12, 2024. An entire year.
Read on for more about my process for this piece.
Continue readingSciArt September 2024
I’ve been participating in SciArt September for a few years now. Glendon Mellow and Liz Butler came up with some excellent prompts yet again this year, each week on a different theme: horror, sci-fi, fantasy, folklore, and the end. I shared older work based on all the daily prompts.
Continue readingI’m on the Arts Ably Podcast!
My interview on the Arts Ably podcast is up! Diane and I talked about how my artistic practices in music, writing, and embroidery shift with my ME/CFS and disability.
I’m on the PEM Podcast!
A couple months ago I had the honour of being interviewed by Daniel Moore for the podcast Post-Exertional Mayonnaise. The name of the podcast is a play on Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS.
Daniel and I had a wide-ranging discussion and talked about whether its possible to flourish whilst living with ME, making art with a disability, flow states, symptomatology, meditation, and Stoicism.
You can also listen on your favourite podcast platform via the PEM Podcast webpage.
The Hum
I have completed The Hum—a piece of music based on my hyperacusis and tinnitus symptoms. It’s just over 11 minutes long, and is a calm, ambient, and somewhat minimalist piece. Here is a 1 minute, 20 second taste of the recording:
You can buy the entire 11 minute recording on my Ko-fi page as an mp3.
Read on for more information about my long and gentle music reintegration and composition process for this piece.
Continue readingMonthlyish Update: Getting Guts in Order (late Sept to early Nov)
Note: This has been cross-posted on my ko-fi. There are a few other monthly updates there if you would like to read back a few months.
Webinar Report
Another monthly-ish update and another very full month. The main creative work on my plate was teaching a webinar for CHASE Medical Humanities about the visualization process I use to create my symptomatology pieces as well as how to use the poetic technique of homophonic translation to re-vision and re-own dense scientific texts.
It felt good to stretch my teaching muscles again. I’ve been teaching in some capacity since my late teens—music, yoga, and meditation—but had to stop when I got sick in 2015. Despite an ME/CFS crash the day before, I was well enough to present my webinar and the participants seemed to enjoy and get a lot out of the work. A few people even shared their symptomatology image/test pieces on social media. Here are a few:
Gillian Blekkenhorst started with a trachea and expanded their piece from there.
website: https://blekkenhorst.ca/
Twitter: @gblekkenhorst
SciArt September 2023
I’ve been participating in SciArt September for a few years now. Glendon Mellow and Liz Butler came up with some excellent prompts yet again this year, and I shared older work based on the prompts. Below are all 30 days of my posts!
Day 1: starry
stars within, stars without (2017) is part of my symptomatology embroidery series. This is a map of the paresthesias (tingling) in my upper body due to ME/CFS, stitched as I experienced them.
A Book, A Card, An Aria, A Teaching
My contributor copies of Sharp Notions arrived and it is a stunningly gorgeous book. It’s hefty and printed on full colour glossy stock.
Continue readingtethered by fluid and ligaments (2023)
I have completed my liver embroidery. It’s another large piece, H 15″ x W 21″ (38 × 53 cm). I stitched it from 20 June 2022 to 5 June 2023. I’ve titled it tethered by fluid and ligaments.
Unlike some of my previous symptomatology pieces, my liver issues haven’t been resolved during the stitching of this piece. . . .
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