I have reached a point in my recovery from ME/CFS that means I am able to write again! ME/CFS is a neuro-immune disease and some of the symptoms include brain fog and cognitive fatigue. When I first got ill in 2015 I was unable to read or write for any length of time because it would utterly exhaust me. I’m very happy to say that I can now read and write with relative ease again.
Most of my writing these days is in the form of journaling, but earlier this year I submitted some of my embroidery work to an anthology about “challenged bodies” and creative work. As part of the In Corpore Sano anthology I was asked to write about my experience of being a creative person living with a debilitating illness and wrote a fairly long essay about that as well as the autobiographical and therapeutic nature of my embroidery work. Continue reading
I was recently featured in Synaesthesia magazine as their artist of the month. The piece focuses on the embroidery work I’ve done to illustrate my ME/CFS symptoms.
I was also the rocur (rotating curator) of @IAmSciArt on Twitter for a week in November and you can see more of my embroidery here (though these links will only work until May 2018). There are two threads, one on anatomy-themed embroideries, and the other on my symptomatology embroideries.
I’m currently working on a large anatomy-themed piece that you can check the progress on my Instagram.
Healthwise, I’m very slowly improving after a bit of a downturn in the fall because of a stomach flu. I’m still mostly housebound but have been able to drive myself to a few appointments and attend a few family gatherings. If you want to know more about ME/CFS I recommend watching the documentary Unrest, which is on iTunes and Netflix.