Crip Time is Usually Not Writing Time

A post on why I’ve been neglecting my blog.

My Primary Sclerosing Cholangitis (PSC) has progressed to the point where some of my flares require long hospitalizations, more IV antibiotics, and ERCPs. I’ve been much sicker for much longer, and sometimes I don’t even have the focus to do much embroidery.

A red & purple organza liver basted onto grey linen. The biliary system with all its branches between the two layers of organza is filled with bilious green. There are small yellow beads on the biliary system inside the smaller lobe. There are white beads sewn on the narrow end of the top organza liver. An arched T shape filled with tight crisscrossing stitches in thick off-white thread separates the large & small lobes of the liver and curves over the top. There are various blocks of text stitched in light grey single strand thread around the image. Some of them are cut off in this photo. They read: roots grow in us. through our landscapes. plexuses. fleshy beasts tethered. By fluid and ligaments. Such a gentle embrace. Beneath our skin. Here is the thing. Laid open. The spells it. A language. Between. this golden ingot. This tailed beast. And its viscous song. What a miracle these spaces. Are what make us whole.
A detail of my liver embroidery tethered by fluid & ligaments (2023) with some of the strictures typical of PSC done as agate beads, with some liver abscesses on the top layer of organza. I have many more strictures now, and as of November 2025 I no longer have a gallbladder. More about this piece here.
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