Tag Archives: ME/CFS

Opera Mariposa Benefit 2024

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I’m excited to announce that I’m a featured artist in Opera Mariposa’s 2024 Benefit + Awareness Month! 🦋 I’m honoured to share both art and music to support the ME | FM Society of BC and raise awareness for those affected by ME/CFS, Long Covid, and Fibromyalgia. Join me for this all-online charity extravaganza at Benefit.OperaMariposa.com from May 1 – June 1, 2024. There’s music, art, over $3,500 in prizes and more – and it’s all for a great cause!

Violet, blue and teal graphic featuring a side profile of a young Asian woman with her hand upheld, a purple butterfly hovering above it. The background features translucent torn strips of paper twined with blue watercolour flowers. Gauzy purple and blue text reads, Opera Mariposa 2024, May 1 - June 1. Benefit + Awareness Month for the ME | FM Society of BC. Smaller dark blue lettering features the URL Benefit.OperaMariposa.com above a globe icon next to the words All online; a spoon icon next to the words self-paced; a closed captioning icon next to the word English; and a dollar icon next to the words By donation and free.
Collage by Christina Baltais. Design by Stephanie Ko

I’m involved in the benefit in a few ways. Read on for how my music and embroidery are being featured!

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‘sensorium’ selected for SK Arts’ permanent collection

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I’m very honoured that SK Arts has selected my embroidery sensorium (2016)—part of my symptomatology series—for purchase for their permanent collection.

sensorium is a depiction of the hypersensitivity and hyperexcitation of my nervous system due to ME/CFS and took approximately 60 hours to stitch. My main sensory sensitivity is to sound and vibration—hyperacusis—which can absolutely overwhelm me depending on the volume and timbre of the sound. My entire nervous system becomes involved, and though this symptom has improved with a lot of desensitization work it still affects me daily.

In the centre of some bone white linen, there is a spine embroidered in a thick satin stitch. Emanating from the spine are thick burgundy lines in an undulant oval shape. This oval is bisected across the middle. In the top half, there is a section outlined in burgundy filled with coiling blue lines and a similar section in the bottom half. The rest of the undulant oval is filled with fine coiling burgundy lines. The spine is very straight, the rest of the embroidery is very coiled and busy.
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