I’m very honoured to have two pieces included in this year’s Opulent Mobility show! Opulent Mobility is an international annual exhibit that asks artists to re-imagine disability as opulent and powerful. It imagines a world where disability is celebrated instead of denied, ignored, and feared. These exhibits are curated by founder A. Laura Brody and disability arts activist and photographer Anthony Tusler and include art and artworks from across the country and around the globe.
I completed my largest embroidery to date—the wandering ghost—in June. The stitched area is 53 x 21 cm (21 x 8.5 inches).
Clean up took a lot more time than usual because the chalk pencil I used was especially stubborn to wash out of the cotton and I wanted to wet block instead of iron it which took a bit of figuring out since that’s a new process for me. But it is done! Aside from cleanup I worked on it from June 14, 2023 to June 12, 2024. An entire year.
Read on for more about my process for this piece.
Continue readingI’ve been participating in SciArt September for a few years now. Glendon Mellow and Liz Butler came up with some excellent prompts yet again this year, each week on a different theme: horror, sci-fi, fantasy, folklore, and the end. I shared older work based on all the daily prompts.
My interview on the Arts Ably podcast is up! Diane and I talked about how my artistic practices in music, writing, and embroidery shift with my ME/CFS and disability.
In April I started a 12-week writing intensive called The Visceral Self with Jeannine Ouellette of Writing in the Dark over on Substack. This intensive was a bit more intense than I anticipated and made me realize that I really need to do things at my own speed. I started off participating fully but had trouble keeping up with the extra reading, and then participating in the comment section fell by the wayside, then I had an infection that meant writing and reading weren’t possible at all for a couple weeks so I had to accept that just doing the main exercises on my own time was all I could manage. I felt that I was missing out by posting things late and not really participating in the comments, but my disability means I have to choose what works for me both physically and cognitively.
Continue readingA couple months ago I had the honour of being interviewed by Daniel Moore for the podcast Post-Exertional Mayonnaise. The name of the podcast is a play on Post-Exertional Malaise (PEM), the hallmark symptom of ME/CFS.
Daniel and I had a wide-ranging discussion and talked about whether its possible to flourish whilst living with ME, making art with a disability, flow states, symptomatology, meditation, and Stoicism.
You can also listen on your favourite podcast platform via the PEM Podcast webpage.
I’m excited to announce that I’m a featured artist in Opera Mariposa’s 2024 Benefit + Awareness Month! 🦋 I’m honoured to share both art and music to support the ME | FM Society of BC and raise awareness for those affected by ME/CFS, Long Covid, and Fibromyalgia. Join me for this all-online charity extravaganza at Benefit.OperaMariposa.com from May 1 – June 1, 2024. There’s music, art, over $3,500 in prizes and more – and it’s all for a great cause!
I’m involved in the benefit in a few ways. Read on for how my music and embroidery are being featured!
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I have completed The Hum—a piece of music based on my hyperacusis and tinnitus symptoms. It’s just over 11 minutes long, and is a calm, ambient, and somewhat minimalist piece. Here is a 1 minute, 20 second taste of the recording:
You can buy the entire 11 minute recording on my Ko-fi page as an mp3.
Read on for more information about my long and gentle music reintegration and composition process for this piece.
Continue readingIt’s been a challenging three months. Winter is always hard on my system and I’ve been getting all my vaccines up to date which has required a fair bit of recovery time. I also found out my cyborg part (an iliac vein stent) needs an adjustment so I’m waiting for a date for day surgery. But, because creative work is what makes me flourish, I’ve done a surprising amount of work in that time.
In December I realized that my routines weren’t working well and were causing me a lot of unnecessary internal urgency so I totally scrapped them and rebuilt them from scratch. It took about a month of trial and error but I now have routines that work so much better for where I’m at cognitively, physically, and with my current projects. My music work is a bit more spaced out now, as is my journaling, but the internal striving and pressure I felt with my old routines is gone.
I do think the impetus for such a large shift is due to my continuing research on the vagus nerve and polyvagal theory. Urgency activates the sympathetic (stress, fight, flight) system, and reducing that means I can come back to ventral vagal (calm and engaged) much more readily which is very good for my entire system.
Note: This has been cross-posted on ko-fi and on Medium.
2023 was a very full year with a few big projects done in tandem with other organizations. It was also the year that I finally felt I had a career again for the first time since the 2015 onset of ME/CFS. Here are some of my plans for this coming year, with the caveat that they are all fate-permitting since I never know what my body might do.
I have three main practices—embroidery, music, and writing—and have ongoing projects in each. My main embroidery project is a very large vagus nerve piece, my main music project is a composition/recording titled The Hum, and my main writing project is writing poems based on my notes from Deb Dana’s polyvagal theory audio course.
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